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APPENDIX C

ANNOTATED BIBLIOGRAPHY OF RESOURCES

BOOKS

SMITH'S RECOGNIZABLE PATTERNS OF HUMAN MALFORMATIONS, 4th Edition K. Jones. W.B. Saunders Co (1988)

This is a compendium of syndromes encountered in clinical genetics. The book provides representative photographs, clinical descriptions, natural course, inheritance patterns, treatment and follow-up information. This is a good reference to help identify a patient with dysmorphic features.

MOLECULAR GENETICS FOR THE CLINICIAN

D.J.H. Brock. Cambridge University Press (1993)

This book starts with a basic discussion about genetic diseases and multifactorial disorders. It also includes a discussion of molecular technology and its application in gene tracking in areas such as molecular cytogenetics, molecular basis of inherited diseases and cancer. The book provides a good background in new molecular technology and its role in the diagnosis and management of a variety of human diseases.

HUMAN MOLECULAR GENETICS

D. Strachan and A.P. Read. Bios Scientific Publishers, Wley-Liss (1996)

This book is for the more advanced student seeking a deeper understanding of the structure of the normal human genome. Where most texts start with a genetic disease and seek to explain its pathophysiologic and molecular basis, this text starts with an explanation of the structure of the human genome, the organization and the expression of genes, and concludes with a discussion of molecular pathology and the causation of human genetic diseases.

CLINICAL GENETICS HANDBOOK, 2nd Edition

A. Robinson and M.G. Linden. Blackwell Scientific Publications, Oxford, London, Edinburgh (1993)

This book is a compilation of disorders in clinical genetics organized by organ/body systems (e.g., neuromuscular, hematologic, cardiovascular, skeletal, respiratory, urogenital, metabolic, and psychiatric disorders, cancer, congenital anomalies, chromosome anomalies, and pharmacogenetics). This book does not provide a comprehensive listing of genetic diseases but rather the genetic conditions that are most likely to be encountered in primary care settings.

GENETICS: HUMAN ASPECTS, 2nd Edition

A.P. Mange and E.J. Mange. Sinauer Associates Inc., Sunderland, MA (1990)

This is more of a conventional human genetics textbook but with updated information in a very readable, well organized and illustrated format.

MEDICAL GENETICS

L.B. Jorde, J.C. Carey, and R.C. White. Mosby, St. Louis (1995)

In paperback form, this is a very good basic text that incorporates classical genetic knowledge with the new molecular technology to provide the reader with an understanding of genetic diseases or conditions.

GENETICS IN MEDICINE, 5th Edition

M.W. Thompson, R.R. McInnes, H.F. Willard. W.B. Saunders Co, Philadelphia (1992)

This is a basic clinical text that has been updated several times since its inception in 1966. It provides a good background with updated information on molecular technology. It is a good book for the clinician.

MENDELIAN INHERITANCE IN MAN, 10th Edition

V. McKusick. The Johns Hopkins University Press (1992)

This is a catalog or encyclopedia of human genes, genetic traits and genetic disorders that has been updated 10 times since it was first published in 1966. Each entry, with a unique 6 digit number, refers to a gene locus and provides the title (disease or trait), clinical synopsis, literature summary and references. This is a valuable desk reference in clinical genetics.

OMIM-ON LINE MENDELIAN INHERITANCE IN MAN

This is a continuously updated version of the text noted above, maintained with funding from the Human Genome Project with support from the Department of Energy and the National Center for Human Genome Research of the National Institutes of Health. OMIM is accessible through subscription via the Internet from The Johns Hopkins University Press. This may also be available through your local genetics center.

DRUGS IN PREGNANCY AND LACTATION, 4th Edition

GG Briggs, RK Freeman and SJ Yaffe. Williams & Wilkins (1994)

This is an excellent collection of easy to read monographs. Each monograph is divided into six sections including the generic name of the drug, the pharmacologic class, the risk factor, a fetal risk summary, a breast feeding summary and a list of references. The fetal risk summaries provide the necessary information to counsel patients about the risk of exposure to a particular agent. The breast feeding sections summarize the literature concerning the passage of the drug through breast milk and the effects, if any, on the nursing infant.

OCCUPATIONAL AND ENVIRONMENTAL REPRODUCTIVE HAZARDS: A GUIDE FOR CLINICIANS

edited by Maureen Paul. Williams & Wilkins (1993)

This is a rather technical book that explores the effects that environmental factors have on reproduction and fetal development. The text includes a section on clinical evaluation and management, and chapters on specific physical agents, chemicals, biologic agents and home and community exposures. The sections on radiation, solvents, pesticides, HIV in the work place and common household exposures are excellent.

VIDEOTAPES

A NURSING ASSESSMENT OF CHILDREN FOR DETECTION OF GENETIC DISORDERS AND BIRTH DEFECTS

This is a 26 minute videotape produced by the Education Committee of the Pacific Northwest Regional Genetics Group (PacNORGG). This is an excellent video designed to provide public health nurses with the information and skills necessary to identify individuals who might benefit from a genetic consultation and refer them for services. This video also comes with a manual that includes a narrative, glossary, pre- and post-test, and resources. To obtain a copy of this program contact the PacNORGG office at: PacNORGG, CDRC Clinical Services Building, 901 E. 18th Avenue, Eugene, OR 97403-5254 or call 541-346-2610.

SUPPORT GROUPS FOR PARENTS

THE ALLIANCE OF GENETIC SUPPORT GROUPS

The Alliance is a coalition of voluntary organizations and professionals. It serves as a forum for addressing the needs of individuals and families affected by genetic disorders. The Alliance can provide you and your patients with information about national support groups. They also publish a Directory of the National Genetic Voluntary Organizations. Information can be obtained by calling
1-800-336-GENE, or 301-652-5553. The FAX number is 301-654-0171 and the address is 35 Wisconsin Circle, Suite 440, Chevy Chase, MD 20815-7015.


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